Heart Biopsy for Amyloidosis

Jackie just called from Kaiser Santa Clara Heart Transplant Center and gave me the great news!

No Amyloid in my new heart!!! Because of the 2R rejection in which Dr. Kevin Anderson and I both had, Kaiser decided to test the new hearts for Amyloidosis now instead of December. We both are negative.

I have written about Dr. Kevin many times throughout this blog and recently linked his blog site with mine (see on the right side bottom for the link). He also has Amyloidosis and is currently being treated by Stanford on chemo. The chemo treatment has made him very sick and fatigue. Also, because of the 2R rejection for two weeks in a row, they are now saying that one of the chemo drugs might be the source of rejection. So, Stanford has suspended the one chemo drug for now until heart biopsy are clear again. Kevin is as he calls it "trailblazing" for me. He is going through all the treatments before me. What is so positive is that he is a doctor and can ask questions and get real answers. I am so lucky to have him in my life at this time. Please look at his blog site from time to time because he writes beautifully and explains the disease clearly for you to understand.

Mom and I went grocery shopping this morning. I get up so early (5:00AM) each day, that today I going to take a nap (little tired). Saturday Mark, Markie and Erin are coming for a visit. I haven't seen them for two weeks. I'm making my spaghetti and meatball dinner for them. It will be fun!

Have a wonderful weekend and enjoy this moment in time.

love,
debbie