I Know It's Been Awhile

Can't believe how long its been since my last post February.  Wow time does go by fast.  Have enjoyed some great moments especially with family and friends.


Well pictures tell the story:

Mark, Markie and Little Markie at the Shark Game

Hailey's first day at preschool

Mark, Erin, Markie and Hailey on vacation in Monterey

The 4 "M"s Mark, Matthew, Maxwell and Little Markie

Papa and Little Markie Painting

Matthew and Maxwell being normal

SMILE AND ENJOY EVERY MOMENT

 

 

Pictures tell a thousand words.  We have had a busy summer with parties, weekends away at the lake and just enjoying every moment.

 

As for my health, everything is going good.  Can't believe it will be 6 years next month since heart transplant.  My light chain count is down to the lowest ever 22.7.  It is so cool to see the letter "L" meaning low finally in that column.  The second chemo Cytroxan has really done the trick.  I hate it along with Decadron but I have to do it.  It's working and I'm going to continue fighting this.  I have a lot more moments to enjoy.

 

 

Enjoy the pictures and hopefully it won't take me six months to write again but if I busy enjoying moments well it will.

 

Love,

Debbie

Time to Update

Can't believe how fast a month can go by.  Not that I have a lot to do each day but I just think that's LIFE!

Well what's been happening!  My grandkids are great and I'm having so much fun every time I see them.

Hailey always dressed up like a Princess

Markie painting with Papa

 

 

They make me smile everyday.  I continue to fight this disease because I want to see them grow up.  Every moment with them is so precious.

 

I saw the specialist at Stanford last week.  He was very happy with my numbers, which are down to 28.  Only 2 points away from normal.  I have to do labs tomorrow and every month I do it is so scary.  I hate waiting for the results.  I know how the disease can just all of a sudden go up for no reason.  Some patients who are on the same treatment plan are not doing well.  I am so blessed and hope nothing changes.  There are a lot of new treatments out there but none that have been approved for humans.  I just have to keep fighting until there is a cure.

 

I have been staying inside a lot lately because of all the flu deaths in our area.  I'm so scared to catch a cold and end up with pneumonia again.  I wear my mask every time I go to Kaiser.  Everyone there is sick.

 

I haven't been to the trailer and hope we can go this weekend if I feel ok.  Every week it is different.  Some days I'm feeling ok with no sickness and then others I'm so sick.  All from the side effects of chemo and the medication I'm on.

 

But I'm so blessed.  Sorry for being so short but just am so tired tonight.  The mind is just not working.

 

Love,

Debbie

 



Favorite Quote

 

 

 

 

 

 

 

We should all live this way!!!!!

The New Year Has Begun

2014 came fast!  I can't believe how fast these years are whizzing by.  I realize how important it is to enjoy every moment.  Moments spent with family and friends are what is important to me.

Mark and I spent a wonderful 6 days at the lake.  We had such a relaxation time.  Of course Mark can't stay still he did a lot of honey dos for me.  He got to go to the casino 2 days and play.  Every day we watched the sun come up over the lake and walked Mia around the park.  I loved that time of day at the lake.  It is so beautiful! 

Steve and Nancie came up on Friday and spent the weekend.  Nancie had so many times to do on her trailer.  It is looking so cute!  We went to dinner Friday night at Riveria Country Club.  Outside the restaurant there is a tree with a "heart shape" on it.  I took a picture and realize "hearts are every where".  The next day we went shopping and I took Nancie to my favorite little shop in Kelseyville called Kelseyville Pharmacy.  Its only open till noon on Saturday so we rushed after breakfast to get there.  I brought 2 inspirational signs and a beautiful heart with a beautiful saying on it.  My plan is to have an inspirational wall of hearts on the outside of the trailer and name it "Hearts are Every Where".  So I'm on a mission to find different hearts with or without sayings.  Mark made me about 10 beautiful red wooden hearts for my back yard here at home.  I love them!!!!

Being at the lake for that amount of time was so peaceful.  I really need time like that.  Moments that take my breath away!!!

This weekend I want to go back but we have to get some things done here at home.  Mark wants to go to Graton casino on Saturday with friends.  Don't know if I'm going yet.  I really love the Graton Casino for the restaurants and the way it looks inside.  Totally a Vegas casino!  Sometimes I like just to relax at home and let Mark have fun with friends.  He needs the time away.  He takes such good care of me and I can be a handful at times.  He hates seeing me sick on the weeks of chemo and going out gives him a break.  Love him so very much!

Next weekend Danny and Diane from Chico are coming to visit here.  Normally they visit at the trailer but they have not seen our new home.  So excited because I get to cook my favorite Italian dinners and we just have a blast with them!  Will take them to the casino because they have not seen it but mostly will stay here at home.  I do want them to visit Mark and Erin to see my grand kids too.

I'm alittle sore today but decided for the next two weeks not to take decadron.  I don't want to be sick when Danny and Diane are here.  So its a vacation from decadron.  Next week on the 15th I will start my monthly treatment of Cytroxan.  Yuck!  Hopefully I won't have too many side effects by the time they get here.  Normally I'm very tired and my digestive system really takes a bunch!  Good thoughts are happening so I won't feel too bad.

Nails and pedicure today.  Relaxation, yes! 

Have a beautiful day!

Love.
Debbie