I decided I couldn't take it any longer! I wrote a letter to the Editor at the Press Democrat in Santa Rosa and it was published today. You can view it online at www.pressdemocrat.com under the editorials.
It felt good to express my feelings about wearing a mask in public. I told the Editor I feel the public should be more compassionate when seeing someone wearing a mask. It doesn't mean they are contagious but that maybe they are sick or recently had a heart transplant and they are trying to protect themselves from infection. I was happy the Editor decided to publish it today and hopefully I can change someone's view.
Kaiser made a mistake on Friday and didn't draw enough blood to do the Kappa and Lamba light chain lab work to determine my amyloidosis count. So yesterday, I had to go back to the lab and draw blood. Hopefully, I will have the results by Thursday. I meet with Stanford on Tuesday, January 13th to discuss my treatment plan and the results of these tests. Also, on Tuesday, Gary and Debbie will be taking me to the heart transplant support group meeting and then to Stanford. I'm so happy to see all my heart transplant friends and hope they are all doing well.
Tippi will be staying with me this weekend when Mark goes to Toronto to visit Maxwell. The "million dollar girls" alone at home - pretty scary! We are going to have so much fun! I'm looking forward to just being able to talk to her face to face instead of on the computer or by telephone. When we do see each other, we are both rushing between heart biopsy, chest x rays or clinic and never get time to visit. It's so comforting to have someone I can talk to about all the things we are experiencing. Makes you realize you are not alone.
Have a wonderful evening and enjoy every moment in time!
Love,
Debbie
2 comments:
i am looking forward to this weekend also :)
Love ya
Tip
My advice to stupid ignorant people is kiss off (hahaha) I am going to get you a shirt, badge, or hat or something that says
"I am not SICK, I have a shared heart I am taking care of, and she is taking care of me..."
Then let people ask you what that means...
I have to admit that before I use to be one of those ignorant people but when some lady at the casino told me that it is to help her from not getting sick because she just had breast cancer surgery then I understand.
Don't worry what other people think Sissy, I will get that shirt for you and you wear it when you go outside so you won't have to listen to people.
Can't wait for our slumber party either, it is going to be so much fun, and to learn so much too.
I love you
me
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