Good News! Just finished my third treatment of Velcade and the nurse Cheryl reviewed my lab results and told me that my Lamba count went down from 277 to 163 in just 10 days and one treatment of Velcade. That is awesome! Now I do know these numbers can go crazy sometimes but that is a decrease of over 100. My kappa light chain count is now at 2, which is below range. I will repeat these tests on the 7th of February before I meet with Dr. Schrier at Stanford. Dr. Dana Weisshaar, my heart transplant doctor, called to say that Dr. Schrier sent her a letter outlining the future treatment plan for me. He did say in the letter that I will follow the Decadron and Velcade treatment plan and if my Lamba numbers don't show significant decrease then a stem cell transplant is needed. He wants me to meet with the stem cell transplant team to go through the introduction to save time later. So Dr. Dana is setting up the appointment for sometime next month. I'm so happy to see these numbers go down! It's what I have been praying for. I have to be patient and keep saying my prayers!
The treatment went well today but I'm already feeling the soreness and swelling in my neck and shoulders. I think its because this is my third dose and the drug is building up in my body. Nurse Cheryl also gave me some nausea pills because she said that can happen too. I'm hoping I feel ok tomorrow for my Amyloidosis support group meeting at Stanford. It's a pretty big meeting with several specialists from Stanford who know alot about Amyloidosis. I will have to wait to see how I feel tomorrow when I get up. Last Saturday wasn't very good but each week is different. I'm looking forward to seeing Dr. Kevin and Barbie at the meeting and my new friends I have met in the support group.
Tonight will be a night to relax. I made a pot roast in my slow cooker and will make mash potatoes and a green salad. YUMMM! The weight keeps piling on but there is nothing I can do to stop it until I'm off these drugs. I'm not too concerned about the weight and will continue to do my daily exercises. I will need the extra weight if and when I go through with the stem cell transplant. I will be on massive chemo and the side effects are weight loss, hair loss, nausea, sores and much more I'm told. So having the extra weight will help in my recovery.
Have a wonderful evening! Enjoy this moment in time. I'm enjoying this moment because I know I'm getting healthy and my body is responding to treatment. What a beautiful moment!
love,
Debbie
1 comment:
Just caught on everything I've missed in the last 2+ months.
Our Mom's were just on the phone talking, while I was reading your blog but they didn't know that.
You sound great. Lots to think about and ponder.
Take it one day at a time it's easier that way.
I can't wait until you meet Sonia.
call me maybe we can get toether all of us girls soon.
Got to get to bed on call tonight.
Love,Hugs and Prayers,
Tami
P.S.Had to catch up on Kevin's blog also.
I feel like I know him. I think it is his strong sense of faith that comes jumping out of his writings on his blog to my heart.
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