HAD THE BEST WEEKEND EVER! TODAY IS THE D-DAY!

    This weekend was the best ever!  I spent 3 nights at the trailer.  The weather was perfect, not too hot.  We spent Sunday night too and came home at 7:30AM on Monday to watch my grand children.  Mark was working in San Francisco that night and didn't have to go to work until noon.  We had dinner on Saturday night with Bob and Cindy Keyes.  Bob BBQ his yummy chicken and I made my roasted onion red potatos.  It was soooo good!  On Sunday my sister Kathy and Ed came to visit and had dinner with us.  Sissy and I sat and looked at my new Foodnetwork cookbook that I love!  It was a very relaxing weekend.

But as my life has been going.  Today is D-Day.  Appoointment at Stanford at 3:30PM with Dr. Schrier.  Due to the recent results I have no idea what he is going to do.  I know one thing I'm going to ask to be on chemo everyweek.  I supposed to be off next week but I don't want to.  I have to be aggressive in fighting this disease.  We will see what he has in mind.

My heart has not had those heavy palpapations in the past few weeks but just little ones.  I have cut out caffained coffee and trying to have less stress.  So we will see in the next few months but heart transplant is saying that I will have to have heart biopsy every 3 months now.

Today is Tuesday and its nausea day.  I'm not able to eat much except cream of wheat.  Then of course by tomorrow the soreness and fatigue start and that lasts until Saturday.  Staying home this weekend and celebrating Mother's Day with my mom here.  The grand kids are coming over to visit and have dinner too.
It will be a fun day!

Last Friday, I was a model again this year in the Go Red Dress for Women and the American Heart Association.  I had so much fun.  I saw old friends who are heart surviors and met new friends.  I took Mom too and she love it.  On May 17th, Mom and I are going to a dinner presentation at a winery to hear Dr. Jeffrey Wolf from UCSF talk about multiple meloluma.  Although I don't have that, he is also a specialist in Amyloidosis and treats some of my support group friends.  It should be interesting and its FREE!

Happy 5 month birthday to my little Hailey.  Markie calls her "Hailey Bug".  She is getting so cute.  I had her chuckling yestereday.  She smiles and coos now and is trying to roll over.  Yesterday was a good day.  My niece Shannon and her baby boy Cashious, Brittary and Daniel (Brittney is due in August) came to visit Mom and I.  We had babies every where.  It was fun!  Little Markie was playing hockey with Cashious and was trying to check him.  Funny but not a good idea.  These are the moments that I'm living for.

Well its time to get ready to drive to Stanford.  Will post results of doctor appointment tommorrow.

Every moment is a gift!  Go out and make those moments count!

Love,
Debbie