I have had so many disappointments in the last few months and I think my new heart is hurting. I have been experiencing flutters and palpitations and have been hooked to a heart monitor for weeks. The doctors felt the disease has progressed into the heart and on Monday it was confirmed. Amyloid has progressed into my new shared heart. Although this is scary I am going to keep fighting. My doctors are monitoring my heart and the progression of the disease so I feel confident. I have to remember that my old heart was not treated for the disease and that is why it failed but I am on chemo every week (decided to stay on every week after this latest news) now and hopefully the progression will be slow. I plan to meet with heart transplant at the end of the month just to be sure of future treatment of the heart. I had an emergency heart biopsy last week and the pressures and echo were normal at this time. This is going to be something they will be checking more closely now.
In the meantime, moments mean more to me NOW!!!! I don't want ugly, negative people in my life and I have surrounded myself with those who love me and care about me.
MANY PEOPLE WILL WALK IN AND OUT OF YOUR LIFE, BUT ONLY TRUE FRIENDS WILL LEAVE FOOTPRINTS IN YOUR HEART!
IT'S NOT WHAT YOU GATHER, BUT WHAT YOU SCATTER THAT TELLS WHAT KIND OF LIFE YOU HAVE LIVED!
We should all live by these simple but true words!
I have been enjoying my time with my grand children. I watch both of them on Monday with Nana aka Nonie. On Thursday, I have Hailey to myself and we are bonding. Little Markie doesn't really like Nana paying attention to little sister, so its hard when both are here by myself. I am so blessed to have these moments with my grand children.
I also have been doing alot and I mean alot of cooking. My favorite project right now is cooking with different vegetables. I make a vegetable Parmesan every week for my Mom and I. It is sooooo good. All veggies and so healthy. It is so funny every night Maxwell asks what's the surprise dinner tonight. So far Mark and Maxwell are enjoying my new creations.
Today is my down day for chemo. I'm really sore and tired. I'm not complaining anymore because I realize I have to fight this disease and chemo is the only thing that will give me time. That's all I want is TIME!
Love this weather and looking forward to spending more time at the lake house. Mark and Jeff are going this weekend to fix our metal shed roof. I have a birthday party for little Cashious, Shannon's son who turned one on April 18th. My sister Kathy will be spending the weekend with me and I'm excited. It will be a girl's weekend with my sister Mary and Mom too.
Please keep the prayers for me going. I really have a fight on my hands. Also, pray for those who are suffering from life threatening diseases. I see this every week when I go to the infusion center and it breaks my heart. Be thankful for what life you have!
Love,
Debbie
1 comment:
I think of you almost everyday. You are so brave. You have a beautiful family and you are truly blessed. Can't wait until you visit So CA this summer.
Love you,
Kath
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