Wednesday, June 6, 2012

HOPING TO FEEL BETTER SOON!

These past few weeks have been rough.  I did have the flu and the reason why I know is because several friends at the lake came down with it too.  I think I'm over that.  I started chemo again this week and feel the same side effects as usual (nausea and soreness and really tired).  My white cell count is going down and that's why I feel tired.  I start second course of Cytoxan next week and dose will increase to 250mg.  We'll see if I feel any side effects with the increase of the dose.

Yesterday I spent most of the day at the hospital.  I had a 9:00am appointment with nuclear imaging to inject radio active dye into my veins which will go to my bones in order to perform the bone scan at noon.  Then it was off to chemo and back to nuclear imaging.  The bone scan took about an hour but the nurse said the doctor wanted to review the images before I left.  Moments later she said that the images showed abnormal findings in my head and that I had to do skull xrays.  I thought what is this about.  So off I went to xray to do the xray on my head.  I left the hospital and 10 minutes later Kaiser was calling saying the doctor wanted more xrays and to come back ASAP.  At this time, I'm feeling so stressed.  I hadn't eaten and it was 3:00PM and all I wanted to do was go home eat and go to sleep.  I was so tired.  Later that day the foot doctor called to say the broken foot was confirmed on the bone scan and to keep wearing the boot for 4-6 weeks.  Then he said I'm not an expert in the field to discuss the head findings but from what he read it look normal.  Thank God.  So I came home and received an email from Dr. Dana who said that the CMV test was negative.  That's good too but there's still one more test she is waiting for to confirm what exactly is going on.  I asked her to look at the report of the bone scan and she also said the abnormal findings were normal and in her words it made me laugh "basically you have a thick head".  Mark laughed and said he could have told the doctors that without a bone scan.  HAHA!  So now I wait for the other test Dr. Dana ordered and see what the next step would be.  I did receive the results from the biopsies from the colonoscopy.  It confirmed Amyloid in the colon and that is most likely why I'm having so much trouble with the stomach and colon.  Nothing they can do and continue treatment.

This weekend its off to the lake.  So excited.  I need to rest and relax.  This has been a very stressful 2 weeks.

Have a wonderful day and enjoy the moment.
Love,
Debbie

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