These are words I try to live by each and every day. Sometimes it is very very hard. I keep fighting because I have so much to live for. My wonderful husband, Mark, my three sons, grand kids, family and friends. I have so much more to see and do in this life and I'm not ready to go!
I want to laugh again till my belly hurts!!!!
Everyday it is a struggle to maintain my health, emotions and mental state. This week was especially hard because I was on both chemo drugs at the same time. Usually for the past 3 months I would take Cytoxan after getting Velcade. This month they landed on the same day. So I was so sick this week. To make things worst I fell again! Now my left foot (which I fractured months ago) and ankle are swollen and sore. Not to say again about the huge cut on my right leg which will turn black and blue soon. This sucks! I know I am at risk of broken bones because of the steroid but here we go again.
I received my light chain count results yesterday. Last month down to 61 and this month up to 70. I know its only 9 points up but I was hoping for a big drop before seeing Dr. Schrier next week. I really want a break and I need it! I'm not asking to stop chemo (either one) I just want to stop Dex for one week a month. As I have said before so many times, that steroid is awful and has so many side effects. I just need a break. So Tuesday hopefully he will give me a break from Dex. I lowered my dose from 40mg to 20mg and that has done nothing, so I think one week a month will help. I want to be a person again. Being sick from Tuesday till Saturday is not the way to live life. It is holding me back from doing the things I want to do. LIVE LIFE!
Keep sending those prayers for Auntie Mary Joan, me and all the others in the world fighting for LIFE!
Love,
Debbie
1 comment:
Bless you, Debbie, as you continue your fight. Let's hope you do get a break from the meds! I feel for you and will pray for you as I always do.
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