Tuesday, November 27, 2012

Still in the Hospital

Day 6 in the hospital.  Hoping to go home tomorrow.  The doctors are concerned about my oxygen level.  It is too low.  This morning blood pressure and oxygen was too low and I have headaches, shortness of breath, and leg cramps.  Just did not feel good!  They still say it is not the heart.  I hope so.

Don't have much to say except please pray.  I need those prayers.

Love,
Debbie

Monday, November 26, 2012

Time in the Hospital

I have been in the hospital since Friday.  I was in so much pain and finally went to see the doctor.  She took xrays and said I have pneumonia.  The pain has been so bad my oxygen level is down in the 80's.  I hope I will be going home today.  I have to do xrays this morning and hopefully it shows I'm improving.  They did a CT scan on Saturday night because they thought I had a blood clot.  Everything was negative.  They also did the blood test for enzymes to see if I had a heart attack.  That was negative and my EKG was perfect.  So the heart is ruled out and all they can say is I have a bad case of pneumonia.  My job these days is to take care of this body and that will be my goal for the next few weeks.

Thank you to all who have sent me prayers and special thoughts. Thank you to my husband, sister Mary and Nancie my neighbor.  They have done so many things to help me while I have been here.  Nancie is an RN and she really made sure I was comfortable.  She even stay all day Saturday until the doctor came in and asked the important questions.  I appreciated that so much.

I hope everyone had a wonderful Thanksgiving.  It was my birthday and we spent it at Joey and Rachel's house.  They did a beautiful dinner and every moment was the best!  I am so thankful to have such a loving family!

I will keep you informed when I will be getting out of the hospital.

Enjoy every moment!
Love,
Debbie

Tuesday, November 20, 2012

Happy Thanksgiving

Happy Thanksgiving to all!  May your day be blessed with family and friends.  Be thankful, be happy and above all MAKE EVERY MOMENT COUNT!!!

Just got back from Pittsburgh yesterday.  To be honest did not feel well the whole time there.  I was on the stronger dose of Cytoxan and it made me really sick.  I spent most of the time in the hotel in bed.  I didn't go to the game on Sunday with Mark and Jeff.  Just too sick!!!  Then the worst of it was the flight home yesterday.  United changed our flight from a non stop to a lay over in Houston.  So instead of a 4 hour or so flight, it was over 7 hours for both flights.  I was exhausted yesterday.

I have been having trouble with my neck since having the heart bio in September.  The doctors think they hit a nerve.  So I have constant pain on my right side of my neck.  I remember a point during the bio when the doctor was pulling out the sample my entire body jerked and came off the table.  It didn't hurt but it definitely was a nerve that was hit.  So now they are trying to decide whether to put me on antiflamatory medication (more steroids).  This is such a pain in the A_ _.  I wish I could feel the way I did over a year ago but unfortunately I have been going down ever since last September.  Yes my heart is strong and I'm surviving a rare fatal disease but I don't feel like my quality of life is what it should be.  I'm blessed and thankful for every day and enjoy every moment I have.

We are having Thanksgiving at brother Joey and Rachel's house.  I'm so excited.  I decided not to take Decadron this week because again I would be sick.  I want to enjoy Thanksgiving and my birthday which is on Thanksgiving!  We made 16 bags or 42 cups of home made gnocchi.  I think we will have enough.

Lots happening the next month.  Hailey turns 1 on December 8th.  I have to start making my gingerbread houses for my grandkids and my donor sisters.  Evelyn and the girls are coming to the trailer and we are going to have a weekend together (girls only) decorating their gingerbread houses.  My little house here is just too small and I thought it would be fun to spend the weekend with Evelyn and the girls.

Have a Happy Thanksgiving!

Love,
Debbie

Tuesday, November 6, 2012

I'm Sick!!!

Took chemo today and Decadron.  Now I'm sick!!!!  I hate Decadron!!!  I'm excited about no Decadron next week only Cytoxan and Velcade.  I'm off to Pittsburg to see my Steelers beat the Ravens!  Can't wait to go!!!!

Enjoy every moment!

Love,
Debbie

Sorry too sick to write more.

Thursday, November 1, 2012

Off Decadron

They are the reason I keep fighting!!!


Can only say off decadron this week and feeling good.  Had a little joint pain and aches which is because I'm not on the steroid but I will take the pain.  Not feeling sick and today is Thursday and so far no soreness or swelling.  I still took chemo on Tuesday and was so nervous thinking I would have other side effects because these past 4 years I have always taken Velcade with Decadron.  So happy to be feeling normal even if it is every other week.

I am so blessed to have a loving and supportive family and friends.  Life is good!!!

LIFE:  Make time to enjoy the simple things in life.  Spend time with family.  Forgive even when it is hard.

Love,
Debbie