Thursday, September 20, 2012

Great News!!

Just saw my results for the month for my light chain count.  Down to 61 from 77 last month.  Finally going down again.  So frustrating last month when they went up slightly.  Being on two different chemos and they go up was really depressing.  But then today good news.  Still not at normal which is between 5-26 but getting there.  I'm hoping to reach normal range and at least stop dex and valcade every week and go on a bi-monthly schedule.  Dexadron is awful, as I have said many times, but for some reason its getting worse.  Nausea lasts from Tuesday till Thursday all day and night.  I'm not sleeping and feel so tired.  I just finished a course of Cytoxan and it does make me more tired.  If you are reading this post, be thankful for every day you have your health.  Going through this experience is awful.  I wish everyday that I didn't have Amyloidosis and ok I can deal with the heart transplant but the chemo and drugs are taking its toll.  Then again if I didn't have Amyloidosis I wouldn't have needed a heart transplant.  I don't ask why and know someday I will know the reason but for now I fight on.

I had a wonderful time in San Diego with Matthew and Maxwell.  Record heat was awful but being with my sons was the best.  They cared for me and watched over me.  I felt like a Queen.  I cooked Max's favorite meals, steak, pasta and chicken parm.  Especially everyday breakfast in the morning.  He was so happy to wake up each morning to a big breakfast.  Of course, every night the boys went out to the clubs and they were feeling no pain in the morning.  I miss him but I'm so proud.  He is going to school and has a great job.  He is supporting himself totally.  I have the best sons in the whole world!!!!!

Next week on September 26th will be 4 years since heart transplant.  Although it is a blessed day, it is also a sad day.  My angel in heaven, Jazmin will always be in my heart.  My donor family loves me and I feel so blessed to have them in my life.  God bless you Jazmin!

This weekend fun times.  Raiders and Steelers game on Sunday.  Having a football party with our tenant and new friend, Nancie.  Both houses will be open for swimming and watching football.  Great food, drink and good friends.  Go Steelers!!!

Go out and find those people and enjoy every moment!

Love,
Debbie

Wednesday, September 19, 2012

Haily 9 months

Hailey "Bug" 9 months old
She is crawling everywhere and soon will be walking.  She is so sweet!

Tuesday, September 4, 2012

Words Cannot Express

September is a month to remember for the rest of my life!  Four years ago in September my life changed forever.  I am blessed to have a second chance at life but realize life is short and every moment is a gift.  Family and friends mean more to me now than ever before.  I went shopping a month ago at the pharmacy in Kelseyville.  I brought a sign that said "Live Simple" and that is what we have done.  Mark is so with me on this change of life.  We enjoy each other more now than ever before.  He is always asking me "Are you happy?"  My answer "Yes" because he makes me happy everyday!

Today is especially or should I say this month is especially hard.  I'm sad but realize how blessed I am to be here writing this post.  Tomorrow will be a better day!



"SO TRUE"



"NEVER FORGET THIS"



I'M SO LUCKY!


Love,
Debbie